Any Advice Welcome
Any Advice Welcome
I currently feel very frustrated with the help I am getting from my GP and was wondering if anyone could offer any advice.
This is only my second bout of cluster headaches. The first was six years ago, lasted about six weeks and was managable with sumatriptan 50mg tablets.
This time is a different matter. There was no real build up and the first attack which happened in the night was like nothing I had every experienced. I only had some old tablets that were two years out of date and so didn't do much.
I'm usually having three attacks a day. One when I wake in the morning, which I have been able to catch at the beginning most times apart from once when it was a definate 7 out of 10 pain that lasted more than an hour. The afternoon one is managable as I am aware that it is coming so can take the sumatriptan in good time and apart from once where it rose to a 4 out of 10 pain and took 2 hours to go they are usually managable and go within the hour.
It is the attacks that wake me from sleep that are unmanageable. I have never known pain like it. The tablets take what feels like forever to work. I have spoken to my GP who says that oxygen therapy is what is required for these. She has referred me on the NHS with a 47 week wait. I have enquired privately but cannot get an appointment before the end of January at the earliest.
I have been back to my GP who has prescribed my nasal spray which is useless as my nose is so blocked during a night time attack.
Today my GP has prescribed me injections but these are only two a day. I have asked what I can do about the third attack and was just told that I can only use the injections twice and cannot use the tablets as well.
I cannot leave the attacks day or night untreated so feel as though the only option I have is to stay on the tablets and suffer terribly with the night attacks.
I have asked if I only use one injection at night am I ok to use tablets for the two attacks during the day but no one seems to know. The GP refers me to the pharmacist who refers me back to the GP.
I really feel like I am going round in circles and it feels as though no one is taking my pain seriously as there is no way I can leave an attack without any sort of treatment however long it takes to work
Thank you for taking the time to read this and I look forward to the response of people who have an understaning of how awful these things are.
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