I am looking to see if anyone else has any experience of this. Over 8 years ago my clusters started and have been chronic ever since. About 6 weeks ago what I never dared think about happened my clusters stopped a level 9 to 10 pain.
However ever since I have been having what I can only describe as a low level clusters getting level 3 to 5 pain still one sided still restless etc.
Is this any one else has experienced? I suppose after 8 yr of this taking over my life I understand clusters inside out but of course never looked into what happens when they stop or change. Just had my 6 weekly GON block and the nurse advise was to have this block as there still lerking in the background.
Any one else experience of this would be much appreciated thanks
