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Reading and Eye movements

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#1 Sun, 29/03/2020 - 02:44
Last seen: 4 months 5 days ago
Joined: 28/10/2019 - 01:36

Reading and Eye movements


I am wondering if anyone experiences the following when they are coming out of episode:

during episode it is near impossible to read which is hugely frustrating and I rely on audiobooks which is great.

however, when I start to come out of episode and I try to read my eyes will suddenly dart to the side of the text that I am reading and I completely lose my place. I'm not sure if this is due to the drugs I am on now (lamotrigine) or if this from the length of episode and my brain 'rebooting'.

I just wonder if anyone else has anything like this?

Many thanks,


Tue, 31/03/2020 - 15:19
Last seen: 6 hours 59 min ago
Joined: 21/03/2012 - 15:16

Hi Becky

Not come across this before, but when this emergency is over, I'd suggest an appointment with your headache neuro, and an eye test.  As a lover of reading myself, it must be frustrating when this happens to you. 


Thu, 02/04/2020 - 21:34 (Reply to #2)
Last seen: 3 years 4 months ago
Joined: 15/09/2019 - 17:36

I have not experienced this, however, I tend to lose vision in my left eye (the side of the attacks) and it can often take a while for me to regain comfortable sight after an attack.


Sun, 05/04/2020 - 12:49
Last seen: 6 hours 59 min ago
Joined: 21/03/2012 - 15:16

Again Mali, I would suggest when you are able, to see your headache neuro and fix an eye test too. 


Sat, 16/05/2020 - 00:40
Last seen: 4 years 1 month ago
Joined: 12/05/2020 - 08:53

Hi Mali, I have just recently been diagnosed with Chronic Cluster Headaches so I am still on a learning curve. I found your description of eye movements when reading very interesting as I am also Dyslexic and although there is no connection between the two conditions this eye movement is something that happens to me, and I believe to other dyslexics and tends to happen when I have 'brain fog' and trying to read. It is extremely frustrating as Ihave to constantly reread sentences to make sense of them. My brain also feels foggy coming out of a Cluster attack but haven't tried reading ,it would be interesting to see if this also happens to me after an attack, will post if it does, at the moment I just feel knocked out after an attack. Your description of the eye movement is very accurate with mine. I do feel like the others that you should get a check up to be safe though.


Mon, 18/05/2020 - 12:10 (Reply to #5)
Last seen: 4 years 2 months ago
Joined: 29/05/2019 - 14:11

My migraines also affect vision in my left eye --, even after an attack for a a period of time i am unable to watch tv or read text as it causes strain to the eye occasionally triggering more attacks. For me it’s more like the eye struggles to focus but this usually passes within 5/15mins


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