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CH and Memory

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#1 Thu, 26/02/2015 - 09:14
Harrietjt's picture
Last seen: 6 years 7 months ago
Joined: 22/10/2014 - 12:47

CH and Memory

We would be very interested to hear what effects on their memory other Clusterheads experience? We think  6 years of CCH has affected my husbands memory much more than we have previously realised and it would really help to know what other sufferers think/experience. 


Thu, 26/02/2015 - 10:20
Last seen: 14 min 43 sec ago
Joined: 21/03/2012 - 15:16

Bit mixed from my point of view.  Long-term memory is fine, but short-term can be a bit hit and miss.  Certainly during an attack memory goes entirely, hubby has had to lead me to the bathrom because I couldn't remember where it was and we've been in this house 20 odd years!


Thu, 26/02/2015 - 18:11
Last seen: 2 weeks 6 days ago
Joined: 26/02/2014 - 17:02

I like to think it's rem sleep related. I've noticed I can't recall some conversation or event details from within bouts, I know the brain sorts information during sleep, so sleep deprivation would mess the whole filing system up.

Emotions and empathy are more of a concern to me: It just feels numb.
I think those parts of my brain have been cooked.

Thu, 05/03/2015 - 22:48
Mr Git
Mr Git's picture
Last seen: 5 years 6 months ago
Joined: 26/02/2014 - 14:34

I think parts of my memory, or the bits that deal with my short term memory have been fried.  Prior to CH everyone joked at my ability to recall information.  Since CH everyone turns away and pretends not to have noticed that I have just put a jar a coffee in the fridge instead of the milk. 

Since CH I can think of tasks that need doing and completely forget them 2 seconds later. I surround myself with pads and pens and try to write everything down as soon as I think of them.

I completely agree with Phil, numb is a good way to describe it. My wife says I'm like a machine. Endless days of relentless attacks continually frying your head takes its toll.

If I could work out how to upload an image to this forum then I would have gone for an image of a fried circuit board. 

However, I plough on with the bits that still work which fortunately include my sense of humour!

Mr Git ;)

Warning: This forum may contain nuts

Sun, 22/03/2015 - 20:03
darren h
darren h's picture
Last seen: 5 years 7 months ago
Joined: 20/03/2015 - 11:43

hi, long term seams fine, short term not so good i lose my list or take wrong list to wrong place shopping with a list for council ect, for some hours after an attack i realy struggle to get my thorts and words in order, so frustrateing trying to comuincate, but i know what i want to say. i just turn it into humor to coap and not look stupid.  dh

Mon, 23/03/2015 - 16:17
Shep1138's picture
Last seen: 4 years 10 months ago
Joined: 05/03/2015 - 16:13


I'm the same my long term memory is good. But my short term seems to have taken a dive. I'm forgetting conversations and mixing words up a fair bit. My wife was a little worried I'd forget where I was up to with my meds so it's all on our calander. I think you've hot to giggle at the silly mistakes and like Darren and mr git (love the name by the way)  said turn it into a joke and try to see the funny side.

Although I am ech my bout has lasted for 7 weeks so far.my mood can be a little temperamental to say the least. I think this is being so run down and the lack of sleep. 



Fri, 17/04/2015 - 21:42
DavidH 7
Last seen: 4 months 5 days ago
Joined: 26/02/2014 - 15:13

I must admit I struggle to believe that there is no long term damage being done (given the level of pain) during episodes ... but I've never heard anything to suggest that any *damage* is being done.  Is there any evidence to the contrary?

Sat, 18/04/2015 - 09:45
Last seen: 7 years 11 months ago
Joined: 26/02/2014 - 14:54

david my short mem is dreadful too, i also have brain lesions no idea how i got them was told severe headaches can cause them.

Sat, 18/04/2015 - 09:50 (Reply to #8)
MissKittyB's picture
Last seen: 7 years 4 weeks ago
Joined: 29/03/2015 - 10:59

I had lesions show up in my MRI too. I was told that these are "quite normal" and I should be "reassured by this"

In a way I was disappointed- I really hoped there would be something to point to and say "there-look- thats the problem. We can fix that". Shows how bad the condition is that I would actually welcome brain surgery....:tired:


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