Another newbie to the site
Another newbie to the site
my names Louise and I'm 25. Last Feb I had severe headaches that resulted me being hospitalised for about a week. I had all test don't, CT's, lumbar puncture the lot and after a few days of pain and suffering I was diagnosed by the neurologist at the hospital will cluster headaches. Whilst in hospital they used sumatriptan but I had a horrible reaction to it and was violently ill and uncontrollably shaking. They didn't try it again but I have read a little bit that you can get side effects a good few times you use it.
They sent me home with amitriptyline as a preventative and my bout lasted about 5 weeks. I had no oxygen therapy or any sumatriptan and had to try and get myself through the pain which was the worst experience of my life. I carried on with the amitriptyline and after 5 weeks by bout seemed to end and I was pain free until this month.
i got awoken Saturday morning at a friends house with the severe pain of a cluster headache. I couldn't believe it had come back after a year.. I was screaming and clutching my head and all we could do was ring 999. Paramedics came and I explained I thought it was the cluster headaches again as it was the same pain as last night but I had only had one bout a year ago. They tired morphine.....didn't work. After 1 hour 10 minutes the pain started subsiding after the help of oxygen at the hospital. I got discharged with nothing but antis iciness from the hospital (the pain makes me violently sick) and to ring them if it happens again. They were pretty unsure about cluster headaches and didn't want to do any further investigations on me, they wanted to free up my bed.
Anyway since then I've had what ive thought to be shadow headaches. Still down my left side behind my eye causing a runny nose and a big puffy eye. They have come and gone all day yesterday and then was woken up this morning at 5am with another 40 minute killer of a headache behind my eye. I could sit down I was bashing my head and just wanted to pull the pain out, I rang 111 and we ran into some problems as I've recently moved (a week ago) and don't have a GP, so I've had the day off work (which is hard for me to do as I work agency and don't get paid if I don't go in) and registered at the GP.
I have an appointment this afternoon and I am hoping the GP is knowledgeable about cluster headaches as I don't want to leave the practice without a prescription for something to help me over what might be a hellish few weeks. I just need some advice because this is only the 2nd time this has happened to me, same time last year.
its really effecting my day to day life as after a big 10/10painful headache I can't do anything after as I feel exhausted and like I've been run over by a bus. I've been reading this forum and you all sound so knowledgable and supportive and I just need a bit of help as I can't let this control my life!
Thank you, Louise x
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