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Sumatriptan as preventative

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#1 Thu, 01/07/2021 - 21:07
Dana
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Last seen: 2 weeks 3 days ago
Joined: 09/02/2018 - 10:17

Sumatriptan as preventative

Hi .
I am a cch sufferer of over 15 years and I also have Suna
I've exhausted nearly all meds .
At present I take keppra at 2grammes twice a day .
Pregabalin 300,100,300
Verapamil 240 three times a day .
Oxygen .
Sumatriptan injections.
My consultant Neurologist, who is a headache specialist has now prescribed 100mg sumatriptan tablet at night as a preventative.
Has anyone used it as a preventative before and has it worked .
Many thanks
Dana

Danaross

Sat, 03/07/2021 - 14:35
John S
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Last seen: 1 month 1 week ago
Joined: 26/02/2014 - 14:41

Hi Danaross,

i am an epsidic sufferer and when I start getting attacks at night I take a 50mg tablet just before bed which generally keeps me pain free at night.

It does count towards one of your two sumatriptan doses in 24hours. I use Oxygen at all other times unless I am out. I have also used a  tablet on a long flight and it also works for me.

I understand using Sumatriptan as a preventative has never undergone medical trials and is not a recommended treatment and some neurologist s frown upon it even though for some of us it works.

As you may know a sumatriptan tablet is not effective as an abortive as it takes too long to be absorbed into the blood stream although some ill informed medical professionals prescribe it , nothing to do with it being cheap I am sure!

Regards

John

Sat, 03/07/2021 - 21:41
Dana
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Last seen: 2 weeks 3 days ago
Joined: 09/02/2018 - 10:17

Hi John .
Thanks for that ,its 100mg sumatriptan tablet before bed as my attacks are mostly at night ,one is always at 01.30 so its to try to help stop this one .
It is also as a add on to the two sumatriptan injections which I did question but he says it amounts to a small increase and hes happy with prescribing it .
I have tried it for two nights so far .
First night no success but the second night was better .
Fingers crossed it works tonight.
Thank you

Danaross

Mon, 02/08/2021 - 00:11
Jaynejordanrhodes
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Last seen: 4 months 6 days ago
Joined: 12/07/2021 - 14:07

Omg just want to warn you about pregablin

I've been taking it for two years now - I now have kidney disease and a fatty liver--  

I am seriously Ill with the withdrawal from pregab!in -it's been two months now , and no help out there .Also along with my permanent headache my life is pretty miserab!e at the moment and then on top of that I have the worry on how bad my kidneys are - waiting on a biopsy 

I've tried sumatriptan injections did not work for me 

I came back on this forum t o see if anyone had rep!did to my post - given any advice etc -unfortunately No---- then I saw your post 

Just want to warn people about this horrible drug - research it, so many people have not a good word  about it 

As soon as I was diagnosed with kidney disease - my headache specialist told me to come off pregablin and go on to duloxetine , which controls my Ice pick - stabbing episodes but unfortunately not the permanent headache -- perhaps this drug might help you ?

Hope this helps 

 

Mon, 02/08/2021 - 00:17
Jaynejordanrhodes
Jaynejordanrhodes's picture
Offline
Last seen: 4 months 6 days ago
Joined: 12/07/2021 - 14:07

Omg just want to warn you about pregablin
I've been taking it for two years now - I now have kidney disease and a fatty liver--  
I am seriously Ill with the withdrawal from pregab!in -it's been two months now , and no help out there .Also along with my permanent headache my life is pretty miserab!e at the moment and then on top of that I have the worry on how bad my kidneys are - waiting on a biopsy 
I've tried sumatriptan injections did not work for me 
I came back on this forum t o see if anyone had rep!did to my post - given any advice etc -unfortunately No---- then I saw your post 
Just want to warn people about this horrible drug - research it, so many people have not a good word  about it 
As soon as I was diagnosed with kidney disease - my headache specialist told me to come off pregablin and go on to duloxetine , which controls my Ice pick - stabbing episodes but unfortunately not the permanent headache -- perhaps this drug might help you ?
Hope this helps 
 

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