Hello

hello my name is wayne, im 29yo and i have had cluster headaces most of my life  but only dignosed 2 yrs ago. I have other health conditions (mental illness) i have a pathner who care for me and looks after me on day to day basics i dont leave home unless very extrame circumstances, im house bound due to the attacks i have and they are very unpredictable and very sudden. I wake up every day fine but within a few mins of being awake i can feel my head starting to flare up and thats how i plan my day. I havent had any remission periods of such a time period its constant and get progressivley worse as the day goes on then may dissaper mid morning to return on the night or eveing the ones that wake me are the nasty ones or the odd other i had this weekend gone after taking my children to see day out with thomas, my medication i recive for my cluster headaces are varapmil 240mg morning 120mg eveing also i have sumatriptan injections and oxygen cylinder x4 and x2oxygen machines i am under a nuroligist and have been for 2 years and now just recived an appointment to see a nurologist in stoke royal infermey 60 miles away from me as they cannot get me to have a remission period they went to up my dose of varapmil but one day i recived a phone call personally from my nuroaligist telling me that the does cannot be increased due to my heart not coping and could lead to caraid arresst or stroke 

at this point im now very very scared i have 3 children and a wonderful loving caring partner who is by my side to help me during attacks, my children are scared as they see the full exxtent of the attackts day in day out and the full blunt of me smashing my head on walls punching my self or me crying and screaming in my bedroom i have all the usual symtoms of cluster headaces, runny nose, pain behind the eye, pain either side of my head, droopy face. once  i have a seriose attack slured speech sweating photophobic both to light and sound red eyes. i take my medication as follows 240mg varapmil on a morning and a 300mg asprin under my tounge if headace progressivley worse if tablets dont work if im out this is when i will use my sumatriptan injection but the rebound headace is 100000000 times worse aftwards till i get home for oxygen this usually take an hour to send the pain off again for around 2 hrs where the pain will come back and sit there again ready to give me that massive bout again:(

it usually take around an hour for oxyen to take affect but only offers me reliff  do have the odd few day of when it settles but no more then 3 days excitment gets the worse of me and makes them worse or even doing phyisical things even to get out the chair and to stand after standing a few seconds it seems the blood rushes to my head and makes  my headace much much worse it seems like ive had to slow my self down massively to stop myself getting the pains but does not work the pain still get best of me over the past 9 months my health has detirated massivley and attacks more frequently my parthner is worried about my health and well being as she has seen the change get worse i could continue to carry on putting my story but its endless but i want to explain my story to help others or for us to seek help from others 

as stated i am awaing an appointment to see a very high nuroligist in 2 weeks in stoke and from what i was being told from my previouse nurologist that they were going to attemtpt to give me lithuim or a steriod injecton in my head or even brain surgury brain stimulatinn??? (im scared to have my head cracked open and have this majour surgery)

i am typing this with a headace and my photophobia is starting to kick in and may not be on for a while so if you could please contact my parthner on fb as leonne boswell and please give her adviceect would be appriceated as i dont use pc much due to heath 

i recive pip also for other health conditions and have been for a while now and my pathner was going to call them to change the circamstances based on my heath at this current moment in times i dont know exactley what i recive in my claim without looking at paperwork but only get £333 a month nothing on mobilty but as me and my pathner have suggested this may now be wrong as i dont seem fit enought to leave the house 9/10 im unsteady after attacks i cannot cook for myself now due to attacks i cannot be away from my medication for such a lengh of time ect would also like some infomation to how i would change these circamstance based on my health and if i would be be worth calling them to see if i was intitiled to more then what i get to help my parthner manage and cope as she says she feels like she has raise our 3 children due to my health i vaule this massivle any help would be greatfull

would like to mention i have tried strict diets to stop intake of coffee choclatte ect i dont not drink alchol at all i do smoke but not a lot i have tried other remidies like eating almonds ect still nothing was looking into the shrooms idea but i have 3 children and wouldnt put my children in danger at all so that a big no no!!!

i did stop smoking for over 12months to see if it would help to no result i havent found my triggers just seems if i do to much or get excited or go over the top sex is the worse and could have massive bouts after this but not always the cause 

i have tried my best to type this out and will get my other half to fix my errors before adding the post