new here

hello all

i have been suffering episodic clusters for nearly 28 years had my first one at 18 way back in winter of 1987 i was walking along the factory floor when suddenly had this excruciating pain in my left eye it put me straight down onto my hands and knees,holding my left hand over my left eye i looked round too see who had punched me (was more like getting shot in the eye with an arrow) found out quickly that alcohol and hot baths,exercise was a no no..and sitting outside in the back garden with just shorts on in winter till im almost hypothermic makes them go away (sometimes) .i used to rub japanese peppermint oil on my temples and forehead when they started sometimes it stopped them but mostly not sometimes the smell would make it worse,accidently got some in my eye once when i rubbed it whilst on a kip 10 and the headache went instantly (fluke) so the next day on a kip 10 why would'nt i oil in the eye jesus worst thing ever kip 20 more like,i tried all sorts to stop them did'nt know what was wrong with me i just suffered them.noticed that sometimes i was absolutely shattered or energetic after having a ch.

didn't know about clusters till around 2003 found out about them online recognised that's the symptoms im having told the Dr i was with at the time but got diagnosed with migraine,tension headaches,depression,treated with paracetamol,codeine pushed out the door again and again different doctors same s**t...all them years still no relief what so ever, so fed up of his hell, so this time last year flipped out at the doctors and demanded to see a neurologist saw him jan this year and yep ch he could'nt believe it took this long to be diagnosed,im on verapimil and sumatriptan injections.i.'ve spared you the long story of 28 years of hellish nightmare (cause you have all been there too) and continue to do so.thanks for reading