Thanks for adding me to this group.
I am new here but not new to CH. I have found the content here very useful.
My history is very similar to many others it seems. My CH started 12 years ago, then spent 2 years before it was diagnosed correctly. During that time I had 2 perfectly good teeth extracted on the advice of my GP & dentist. Then started on various medication over the next few years without any relief. Then had some nerve ablation proceedures in hospital, this was very unpleasent and did not help. I have now accepted that when the pain is not there it will only be a matter of time before it returns. I take Verapamil regularly and never leave home without my Sumatriptan injections (this is the only pain relief that works for me). The problem with this is when I have used it twice in 24 hours I just pray the CH will not return for a few more hours.
Sorry if this not very interesting but it is good to get it off my chest to people who understand.
Peter
Joined: Wed, 04/15/2026 - 17:47
Last seen: 3 months 3 weeks
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Submitted by Val on Tue, 11/27/2018 - 09:15
PermalinkIt is very interesting as you
It is very interesting as you seem to have had a bad deal from the medical profession. I suggest you read the document'Cluster Headache Basics', in the 'Get Informed' drop down menu [see top of page the blue band of titles]. You will see that you can get high flow oxygen from your GP, how to get it, what form to download and also we suggest you ask for referral to a headache neuro. So life might be a bit better for you with the oxygen as well as the sumatriptan. Oh and you only need to take verapamil when in cycle.
Val.
Joined: Thu, 11/07/2019 - 20:49
Last seen: 6 years 9 months
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Submitted by PeterRB on Tue, 11/27/2018 - 10:37
In reply to It is very interesting as you by Val
PermalinkThanks Val. Very helpful.
Thanks Val. Very helpful.