Thanks for adding me to this group.
I am new here but not new to CH. I have found the content here very useful.
My history is very similar to many others it seems. My CH started 12 years ago, then spent 2 years before it was diagnosed correctly. During that time I had 2 perfectly good teeth extracted on the advice of my GP & dentist. Then started on various medication over the next few years without any relief. Then had some nerve ablation proceedures in hospital, this was very unpleasent and did not help. I have now accepted that when the pain is not there it will only be a matter of time before it returns. I take Verapamil regularly and never leave home without my Sumatriptan injections (this is the only pain relief that works for me). The problem with this is when I have used it twice in 24 hours I just pray the CH will not return for a few more hours.
Sorry if this not very interesting but it is good to get it off my chest to people who understand.
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