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#1 Thu, 22/11/2018 - 15:34
PeterRB
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Last seen: 2 weeks 6 days ago
Joined: 29/08/2018 - 15:06

Hi

Thanks for adding me to this group.

I am new here but not new to CH. I have found the content here very useful.

My history is very similar to many others it seems. My CH started 12 years ago, then spent 2 years before it was diagnosed correctly. During that time I had 2 perfectly good teeth extracted on the advice of my GP & dentist. Then started on various medication over the next few years without any relief. Then had some nerve ablation proceedures in hospital, this was very unpleasent and did not help. I have now accepted that when the pain is not there it will only be a matter of time before it returns. I take Verapamil regularly and never leave home without my Sumatriptan injections (this is the only pain relief that works for me). The problem with this is when I have used it twice in 24 hours I just pray the CH will not return for a few more hours. 

Sorry if this not very interesting but it is good to get it off my chest to people who understand.

Peter

Peter B

Tue, 27/11/2018 - 09:15
Val
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Last seen: 17 min 20 sec ago
Joined: 21/03/2012 - 15:16

It is very interesting as you seem to have had a bad deal from the medical profession.  I suggest you read the document'Cluster Headache Basics',   in the 'Get Informed' drop down menu [see top of page the blue band of titles].  You will see that you can get high flow oxygen from your GP, how to get it, what form to download and also we suggest you ask for referral to a headache neuro. So life might be a bit better for you with the oxygen as well as the sumatriptan.  Oh and you only need to take verapamil when in cycle. 

Val. 

Tue, 27/11/2018 - 10:37 (Reply to #2)
PeterRB
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Last seen: 2 weeks 6 days ago
Joined: 29/08/2018 - 15:06

Thanks Val. Very helpful.

Peter B

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