I spend a bit of time in the garden removing weeds etc. I have just recently got another strange symptom when I bend over my head hurts, after a few occasions the feeling in my head goes into cluster attack. never had this before although often get dizzy bending over which i have always put down to verapamil [low blood pessure or mild heart block]
anyone else had clusters from bend over, now reluctant to bend over, having to sit down on the ground to garden now.
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Submitted by Colin Allen Vi… on Thu, 11/09/2014 - 09:57
PermalinkDavid, it may be that you are
David, it may be that you are aiding the vasodilation process by bending over. Pretty much the same as lying down.
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Submitted by duetto on Thu, 11/09/2014 - 14:49
Permalinklying down i can do ok during
lying down i can do ok during the day but at night very often get restless then cluster, but bending over cannot put up with it at all during the day.
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Submitted by Brian C on Thu, 11/09/2014 - 20:40
In reply to lying down i can do ok during by duetto
PermalinkHi Duetto I have just reieved
Hi Duetto
I have just reieved a grant from the Social Fund as I can't sleep lying down even in Hospital I would sleep on a reclining chair, and I have done this for the past three years.
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Submitted by Colin Allen Vi… on Thu, 11/09/2014 - 21:06
In reply to Hi Duetto I have just reieved by Brian C
PermalinkThere you go. Lying down or
There you go. Lying down or bending over is a guaranteed hit for me,when in cycle. I always go to sleep propped up at an angle of at least 45 degrees.
David, I wish you would be a little more circumspect about your thread titles...............I thought I'd hit a dodgy website when I logged in.
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Submitted by Amethyst73 on Thu, 11/09/2014 - 21:49
PermalinkHAVE A RECLINING CHAIR THAT I
HAVE A RECLINING CHAIR THAT I DON'T WANT OR NEED WAS GOING TO GET COUNCIL TO TAKE TO TIP I got its brand new as was refused the social fund loan as too exspensive as they start at about £1,000 upwards for a good one,mine i tried it a few times,but sadly due to my knee deformity when it leans back & my feet get raised it means my knee caps float.So due to that when I use it after a while I get really bad pain in my knees,hip,then when I try & stand up as my legs are weak from shaking.When I try to stand my knee caps are not in right place & also weak so I was having to use a frame,as had to rest on that till feel able to walk.Since then the chair has been put under a cover in my living room,can't wait to get rid of it sadly I can't pace up & down or walk as my knees are too bad,so have to lay sat up but struggling as got muscular fascitus so when bad its very painful to turn on oxygen & use then injection pen but when really bad can not even hold the pen or turn on oxygen,the oxygen company brought a thing to fit on flow but sadly that made it worse as couldn't get my hand in to turn it.So for past month been having to cope with out oxygen or pens but if you would like this chair you would be welcome to have it for free as long as you don't mind the flower material I hated it so covered it with a throw so offer is there if you want it,as I am getting fund grant to get a snuggle chair or two sweater sofa as till I can I can't sit in my living room have to stay in bedroom.So the offer is there has remote & all the stuff that came with it & hardly used so if want it then its your if not if there is any one that could use it they can have the chair.Amethyst
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Submitted by duetto on Fri, 12/09/2014 - 09:23
PermalinkAmethyst thankyou for the
Amethyst thankyou for the offer of the chair, but we already have a "Lazyboy" recliner chair which which i use when on o2 and for imigran jabs to kick-in with me jabs take up 15min or so to work. still sleep but with plenty of hard pillows to prop me up.
tried a recliner bed in QS when i was in there did not like it at all.
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Submitted by Amethyst73 on Fri, 12/09/2014 - 16:35
In reply to Amethyst thankyou for the by duetto
PermalinkThis is Not a lazy boy its a
This is Not a lazy boy its a medical equipment chair that can lay flat at different angles & also will help you stand up it cost over £1,500 so its like the ones in adverts for elderly,has a remote for you to change your position when flat.So if you need your head higher than your legs you can,then when you want will help you stand up as can be difficult that's why I offered as know a lazy boy wouldn't make any difference .
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Submitted by TMC on Sat, 13/09/2014 - 07:15
PermalinkSounds like heaven - those
Sounds like heaven - those chairs are amazing! I know that I'm new to this site, but if there is another one of these chairs going spare, please let me know! I'd love one but can't afford it :-(
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Submitted by Val on Sat, 13/09/2014 - 09:40
In reply to Sounds like heaven - those by TMC
PermalinkI've used a pile of pillows
I've used a pile of pillows topped by one of those V shaped pillows for years now. I can't sleep lying flat and I snapped at one nurse at QS who tried to lower my bed head during the night once.
Val.
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Submitted by duetto on Sat, 13/09/2014 - 20:41
PermalinkI have a hard pillow which i
I have a hard pillow which i bend over one sometimes twice and just started putting a firm cushion on top too. most attacks on my right side so i try and get some pressure there will sometimes helps too.
one daft thing i tried ages ago was a "medicpillow" with sewn in magnets gave me a dreadful 24hour severe head pain never again.
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Submitted by Amethyst73 on Sat, 13/09/2014 - 21:11
PermalinkThese chairs are not coming
These chairs are not coming from charity I posted when saw someone was going to apply to social fund to get one,so thought would offer mine as cant use it,So if Colin or anyone else can advise about donating this chair to Ouch
So how long have you had Ch?TMC if you don't mind me asking "just to say Its Not A Lazy boy" it's a recliner chair with remote.I got brought it new for my arthritis am unlucky that my due to my deformity i couldn't use it,but as cant stand so can't pace but lucky have an electric bed raiser that can go from flat to 45 degrees.But lucky these can be got through a local Occupantional Therapist mine is to help me sit up due to arthritus lucky as can use with the fab V pillow,& am same its called don't mess with my pillow pile as poor warden found out other night.
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Submitted by TMC on Sun, 14/09/2014 - 09:11
In reply to These chairs are not coming by Amethyst73
PermalinkI'm a new survivor. I was
I'm a new survivor. I was diagnosed by GP in May and Neuro last week. Im just finding sleeping tough at the moment and trying to get used to living with the beast. From what you've said, it soundly like this chair might be overkill for me.
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Submitted by Val on Wed, 17/09/2014 - 08:31
PermalinkDavid, have you tried the
David, have you tried the hospital way of banking pillows? You'll need four. put one pillow across the bed almost against the headboard/wall. Then take two pillows and make an inverted v with the bases resting against the outer edge of the horizontal pillow and then put the fourth pillow across the top of the inverted V, that doesn't slip so much as the conventional pile and rolled up pillows, but the inverted V pillows supported by some ordindary ones is best of all.
Val.
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Submitted by duetto on Tue, 30/09/2014 - 21:18
Permalinkspoke on the phone to the
spoke on the phone to the headache nurse, advised to discuss with the gp. when i mentioned bending over and headaches she took bloodpressure that was ok so advised i go for an eye test!!!!!!!!!
well been searching the net i have a mild nerve neuropathy apparently that can cause blood pooling and prevent constriction of blood vessels may explain my bending over and lying down problems and some of my other symptons listed there too. awaiting call back from headache nurse at the end of the week.
may be a red herring but so many of my unexplained sytoms listed here.
the info incase anyone else is similar
http://neuropathyaction.org/neuropathy_101/signs_and_symptoms.htm
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Submitted by Colin Allen Vi… on Wed, 01/10/2014 - 08:29
In reply to spoke on the phone to the by duetto
PermalinkNeuropathy is quite common
Neuropathy is quite common with diabetics. Bending over resulting in headache is also symptomatic of a person who is not properly hydrated.
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Submitted by duetto on Wed, 08/10/2014 - 23:18
Permalinkcolin thanks
colin thanks