New to Cluster headaches (and here)

posted: - last updated:
Online
SueAB

Joined: Wed, 21/10/2026 - 14:44

Last seen: 2 hours 4 minutes

Submitted by SueAB on

Hi, I have only recently started getting these Cluster headaches.  After waiting a week to see a GP he confirmed they were Cluster headaches, I already guessed as had researched myself.  I also get (Thunderstorm triggered) Migraines too and this time it started off the Cluster headaches by having a real bad one.  Then daily each morning I get my stabbing head pains which I found really scary at the time.   My GP has only given me 6 Sumatriptan tablets which is useless for the Cluster headaches.  What can I ask for to help me, this pain is so bad and when it happens it makes me almost drop down.  GP tells me it will suddenly stop and I hope he is right, if you have to live with this for evermore nothing will get done in life.  

I'm so glad I found this site and have willingly joined in the hope of finding out more about it all. 

Online
Phil - OUCH UK

Joined: Fri, 16/10/2026 - 18:59

Last seen: 4 days 21 hours

Permalink

Welcome to OUCH, sorry you need to be here.

You'll want to have your GP refer you to a Neurologist that specialises in headaches: If you give the helpline a call on 0800 6696 824 they'll be able to find your nearest suitable Neurologist.

You're right about Sumatriptan: The BNF and NHS website state not to give oral mediction. You should ask for the subcutaneous injection or nasal spray.

Episodal Cluster Headaches do stop as suddenly as they start, but can last for weeks or months.

You're in good company.

Login to add comments