OUCH(UK) Organisation for the Understanding of Cluster Headache


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Study Seeking Patient Experiences to Redesign Headache Management with Technology

About the Study
We are a team of physicians and researchers at King’s College London studying the management of headaches within our healthcare system. We hope to evaluate patient experiences with headaches in the NHS at every level, from GP appointments to pharmacy and hospital visits. Our objective is to put together an accurate representation of the clinical headache pathway and identify pain-points and inefficiencies, to propose a system-wide redesign of the pathway more capable of adopting digital tools and technologies that can improve patient care.

Who can take part?
We are looking for individuals who have attended the healthcare system in any capacity for their headaches, such as through general practices, emergency departments, and specialist clinics. This includes all non-emergency conditions (migraines, tension headache, drug-induced headache) and emergency presentations (e.g. brain bleeds). Any ages, medical conditions, and outcomes welcome.

What will the study involve?
Participants will partake in a 2-3 hour workshop in Waterloo, London on the 16th July to share their experiences, and will be compensated £50 for your time (this includes £10 travel reimbursement). Your vital input will be used to guide the proposed redesign of the clinical management of headaches.

If you would like to take part
Please sign up here: https://forms.gle/jbPwizDiy63WW48AA

Should you have any questions, please do not hesitate to contact the research team at matthew.lee9@nhs.net.

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