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Sumatriptan nasal sprays

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#1 Wed, 13/03/2019 - 21:09
AndrewH
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Last seen: 5 hours 58 min ago
Joined: 24/03/2018 - 21:13

Sumatriptan nasal sprays

Recently been prescribed Sumatriptan nasal sprays by my neurologist. I had the injections many years ago, but for 10 minutes after injecting I would go bright red and my whole head felt like it was going to explode.

The neuro wrote to my GP to try the nasal sprays and he gave me 8, which lasted about 5 days, so I phoned him and asked for more, but he seems slightly reluctant to prescribe many. I got him to let me have 24 and assumed he would put them on repeat, but he hasn't. I can't find any reason the amount of nasal sprays should be restricted or treated differently to the injections.

Is this just a case of GP not being sure and me needing to push more or am I missing something?

 

Edit: should have said, the nasal sprays take slightly longer to work, but I've found them very effective (and my head doesn't explode).

Mon, 18/03/2019 - 10:02
Val
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Last seen: 5 days 5 hours ago
Joined: 21/03/2012 - 15:16

Hello Andrew

You could refer your GP to the NICE Headache Pathways, which include directions on how much to prescribe for CH sufferers: 

https://pathways.nice.org.uk/pathways/headaches#path=view%3A/pathways/he... 

If he is still stingy with quantities, then called your Local  CCG [Clinical Commissioning Group, they used to be PCTs] and ask to speak to the prescribing adviser.  Put the name of your town in your internet search box and then 'CCG' and it will come up with the contact details.  

Val

Mon, 18/03/2019 - 10:03
Val
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Last seen: 5 days 5 hours ago
Joined: 21/03/2012 - 15:16

Hello Andrew

You could refer your GP to the NICE Headache Pathways, which include directions on how much to prescribe for CH sufferers: 

https://pathways.nice.org.uk/pathways/headaches#path=view%3A/pathways/he... 

If he is still stingy with quantities, then called your Local  CCG [Clinical Commissioning Group, they used to be PCTs] and ask to speak to the prescribing adviser.  Put the name of your town in your internet search box and then 'CCG' and it will come up with the contact details.  

Val

Mon, 18/03/2019 - 19:45
AndrewH
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Last seen: 5 hours 58 min ago
Joined: 24/03/2018 - 21:13

Thanks Val, that's great.

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