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Sumatriptan 50mg tablets

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#1 Wed, 16/12/2020 - 16:05
John4703
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Sumatriptan 50mg tablets

I am new to this.  I started having extreme headaches about three weeks ago.  I saw my GP who sent me to hospital where I had a CT scan and answered loads of questions.  He was concerned that as I am 73 I am rather old to start having these.

I was discharged with a diagnosis of Cluster Headaches and a pack of six Sumatriptan 50mg tablets.

I asked my GP for more and he has prescribed another six tablets.

Is there any reason why I can't get a pack of 28 or more?   I have taken one most nights, as they almost stop the headache.  I can phone my GP again but want to know what is reasonable to ask for.

John

Thu, 17/12/2020 - 20:14
Moonboys5
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Hi John,
Would contact your GP and ask to try something else if Sumatrupan are not taking the headaches away. Believe there is a dosage limit hence 6 only.

Fri, 18/12/2020 - 19:08
John4703
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I put the repeat prescription form in the box at the surgery yesterday.  I attched a letter asking for a more reasonable number of tablets.  I will go to the pharmacy next week and see how many I have been given.  

 

John

Sat, 19/12/2020 - 02:04
briggsmarkj@hot...
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Hi John. I'm sorry, if you are getting cluster headaches, and I have every sympathy if you are. The sumatriptan tablets won't really do much to help. You need the injection version of it. Other than that as a longer term solution take verapamil tablits, but they effect your heart so would need regular check ups. I feel for you if you have somehow developed CH that late in life. Hope you can get some relief. All the best

Sat, 19/12/2020 - 02:10 (Reply to #4)
briggsmarkj@hot...
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Also didn't mention, most GP's dont even understand what a cluster headache is, so won't prescribe them! You need a specialist neurologist to diagnose. And then a hospital confirmation. I spent years doing that but eventually got prescribed the injection. It's the only way to abort an attack. I now take verapamil daily and get through life ok with it. Still get them but not often. The few side effects far outweigh the benefits.

Sat, 19/12/2020 - 09:43
John4703
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Thanks for all the replies.  My GP diagnosed cluster headaches and sent my straight to hospital for a CT scan, blood tests etc to make sure it was nothing else.  At the hospital the consultant said there is a Headache Clinic in a different local hospital and if I need to I'll ask for a referral to that one.  I should get an MRI scan soon to further check for causes.
The great news now is that today I am breathing through both nostrils and did not have a headache last night smiley

John

Sun, 20/12/2020 - 11:34
Val
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John4703, hello, 

Have a read of the cluster headache basics document, it will outline both how to get a referral to a headache neuro and secondly how you can get the correct meds from your GP.  The tablets are not strong enough for CH, as you yourself have said they don't quite get rid of the attack.  You need either the nasal sprays or the self injection sumatriptan and high flow oxygen - provided of course you have no circulatory or chest conditions.  Seeing a headache neurologist is important as they will write to the GP saying what you should be prescribed.  All the meds I have mentioned can be prescribed by a GP, and if you have the back-up of a headache neurologist there shouldn't be a problem with prescribing.  

Hope this helps. 

Val

Wed, 23/12/2020 - 13:55
John4703
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Thanks Val,

I collected 12 tablets yesterday so they will get me through the festivities.

I've got an MRI scan on 5th January and will see what the resuts of that show.  I expect a referal to the local neurosurgical unit once the covid chaos ends

John

John

Wed, 23/12/2020 - 22:44
DavidH 7
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I've always believed that Cluster Headaches tapered off with age, so it might be useful to be ... curious (though perhaps someone wiser/qualified could add to this?)

I have to confess that when I was first prescribed Sumatriptan tablets, I thought they were a thing of wonder but, honestly, I'd echo the suggestions that you really want the injections, if safe for you to use.  They really do improve the quality of your life during an episode.

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