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Some doctors grind my buffers

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#1 Tue, 27/08/2019 - 09:36
Bookwormohyeah
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Some doctors grind my buffers

Went to the gp to have just a normal blood pressure check and to get more of my sumatriptan injections but I didn't get to see my own doctor instead I saw the main gp of the practice and he tells me cant have more injections as he just thinks I'm getting stress headaches which I'm not i have done my research as I'm sure you all have when told you have ch but because I also take sertraline a antidepressant for my PTSD I must just be stressed and because I'm a woman and have periods that's another reason I have headaches he told me itll go away on it's own and left me with another lot of different antidepressants on top on my one cannot wait to see the nourolrigist in January

×bookwormohyeah×

Tue, 27/08/2019 - 18:20
CarrieF
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Miserable for you, I get the injections are really expensive but I’ve been asked so many times if I’m depressed or stressed. 

I thought having a diagnosis from a neurologist would help but I think it’s so rare most doctors think it’s triggered like any other headache.  

Tue, 27/08/2019 - 20:04
Bookwormohyeah
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That what has annoyed me about it all I was getting on fine with what I had now hes changed it all and the stuff hes putting me on doesn't work I've done a lot of research

×bookwormohyeah×

Fri, 30/08/2019 - 12:37
Bookwormohyeah
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So update I spoke to my own doctor was told to ignore the last doctor and I now am back on my injections

×bookwormohyeah×

Fri, 13/09/2019 - 10:11
Globaldavelewin
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I’ve just had the diagnosis from the Neurologist after seeing the doctor who just said they were headaches caused by stress, I recorded an attack to show these were not normal and the pain was unbearable, my children was seeing this and was etiously starting to affect my mental state. Now on verapamil and sumatriptan injections but not on repeat prescriptions. I told him I have needed an injection every night almost for the last few weeks as it’s the only thing stopping me from caving my head in. 

Thu, 26/09/2019 - 08:45
Wendy Bailey
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I am a new Cluster Headache sufferer. It started so suddenly two weeks ago.  Sent to A&E by GP, had CT brain scan (all OK) now on Verapamil 240mg and Sumatriptan 10mg.  I was given oxygen in hospital - which was very successful in clearing up the aftermath debris hanging around after an attack.  
 

I have tried to get oxygen via GP but no success - 'it's not for people with a headache' !  But NICE guidelines say it is for Cluster Headaches  

i have entered a nightmare pain world that is beyond my comprehension.  I'm reading and researching all I can to discover how I can live with this condition .  As you know, reading etc is not easy with this thumping dancincing devil on my face, ear , eyes and head.  
nice to say hello   
 

Wendy , Colchester 

 

Wendy Bailey 

Thu, 26/09/2019 - 08:47
Wendy Bailey
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Any help to get my photo image straight would be appreciated! 

Wendy Bailey 

Tue, 01/10/2019 - 14:22 (Reply to #7)
OUCH
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Joined: 26/09/2011 - 14:43

Hi Wendy - I was just doing some tech updates and I saw your post - I've straightened your picture!

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OUCH(uk)
Organisation for the Understanding of Cluster Headaches

Sun, 06/10/2019 - 16:40
Ihpatterson
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Joined: 27/05/2017 - 17:40

When I first started an episode I did not know nor did A&E what it was. My son entered the symptoms onto Google which suggested CH. Went to GP who said she had heard of CH but knew nothing about it! She offered an NHS appointment with a neuologist in a few months.

So I researched the CV s of neuologists at my local private hospital and got an appointment with an expert in two days who confirmed CH and wrote to GPS with correct treatment, sumatriptan injections for immediate relief and a course of steroids for prevention. But he said that in the case of only occasional episodes cure was , unusually, better than prevention so I have not used the steroids.

This cost £150 which was well spent

At first the GPS insisted on private prescriptions for the sumatriptan injections (£55 each pair)  but after referring them to the NICE guidelines I have got them on the NHS.

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