OUCH(UK) Organisation for the Understanding of Cluster Headache

Donate

Advice Line

0800 6696 824

Occipital Nerve Stimulation

7 posts / 0 new
Last post
#1 Sun, 15/02/2015 - 16:59
SarahC
Offline
Last seen: 2 weeks 3 days ago
Joined: 26/02/2014 - 14:55

Occipital Nerve Stimulation

Is this procedure still performed at St Thomas'

Mon, 16/02/2015 - 12:12
Val
Offline
Last seen: 11 hours 28 min ago
Joined: 21/03/2012 - 15:16

Yes, as far as we are aware, it is. 

Val. ;)

Mon, 16/02/2015 - 19:00 (Reply to #2)
SarahC
Offline
Last seen: 2 weeks 3 days ago
Joined: 26/02/2014 - 14:55

Ok. My neurologist at Queens Square believes no one is performing ONS as the government aren't funding it for headaches. However i have been told that Dr Lambru at St Thomas' does. Does anyone know if this is the case. Thanks

Mon, 23/02/2015 - 19:27
Harrietjt
Harrietjt's picture
Offline
Last seen: 6 years 8 months ago
Joined: 22/10/2014 - 12:47

I am guessing this is the ONS implant that is being asked about: they do it at the Radcliffe. My husband has just recently been put on the pathway for it due to medically intractible CCH. I understand it is funded when all the medical options have failed.

Harriet

Wed, 25/02/2015 - 20:08
Val
Offline
Last seen: 11 hours 28 min ago
Joined: 21/03/2012 - 15:16

Hi Sarah

Yes, I think Dr Lambru and his colleagues offer ONSI, I know sufferers who have had batteries replaced etc.  They have a specific Pain and Neuromodulation department at St Thomas.

Val.

Sat, 30/05/2015 - 17:52
headache15
Offline
Last seen: 9 years 1 month ago
Joined: 30/05/2015 - 13:21

Does this ONS work for CCH?  I've had my headaches now for 2 years with very little time without a headache. I've tried all kinds of meds. And nothing works. Now I'm going to Dr. To see about the ONS  I'm hoping it will work

Thu, 04/06/2015 - 22:07 (Reply to #6)
Brian C
Offline
Last seen: 2 years 10 months ago
Joined: 26/02/2014 - 14:35

Odd;s are less then 40%m anyone saying other wise' is a L..........R

NEEDS TO LOOK AT UPDATED FIGURES' AND IT HAS NOTHING TO DO WITH MONEY THE PROCEDURE DORS'NT WORK 'I KOWI HAD MINE TAKEN OUT AT ANADITIONAL COST OF £10;000

Login to add comments

Share This

© OUCH(uk) 2024 | email: info@ouchuk.org
Registered Charity No. 1091919 | Registered in England Company No. 04339368