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Newbie...question about frequency

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#1 Fri, 01/03/2019 - 16:19
Karen M
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Last seen: 1 month 3 weeks ago
Joined: 01/03/2019 - 14:40

Newbie...question about frequency

I have for years sufferef from chronic daily headache, then chronic migraine (under the care of Dr Weatherby in Plymouth).
I have recently had 3 attacks, each individual, spaced 6 weeks apart which were excruciating and each lasted about 2.5 hours.
Unlike my migraines, there was no aura, I had to pace my living room, tried pulling my scalp off my skull using my hair, dripping eye and nose. If pain could get worse, I couldn't imagine it..you all get the drift!
My wonderful GP spoke to a neuro at the hospital and they agreed that it sounds like CH, and I have been prescribed Sumatroipran injections. I have a follow up appt with Dr Weatherby in April and will discuss this further with him.
Anyway....my question is with regard to frequency as there has been no 'cluster'. Can it start off this infrequent?
My heart and soul goes out to those who suffer much worse than I have, as the single episodes I had were frightening and so incredibly painful.

Karen

Fri, 01/03/2019 - 16:21
Karen M
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Last seen: 1 month 3 weeks ago
Joined: 01/03/2019 - 14:40

*Sumatriptan... Blooming spell check!

Wed, 06/03/2019 - 22:03
DavidH 7
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Last seen: 1 month 1 week ago
Joined: 26/02/2014 - 15:13

Hello.  My experience of Cluster Headaches is that they're at least every day (for myself, during an episode, up to six times per day).

Did the Sumatriptan work?

Does anyone else have any useful thoughts on this? 

Mon, 18/03/2019 - 09:55
Val
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Last seen: 1 week 3 days ago
Joined: 21/03/2012 - 15:16

Yep even with 6 weeks between individual attacks, you could well have cluster headache .  I'm not a doctor, but I've spoken to hundreds of sufferers and no two people suffer CH in exactly the same way.  The only factor common to all sufferers is the excruciating pain.  Thank goodness you are under the care of Dr Weatherby, he is great! 

VAl. 

Tue, 19/03/2019 - 14:30
Karen M
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Last seen: 1 month 3 weeks ago
Joined: 01/03/2019 - 14:40

Thanks for the responses. I've just chased the hospital for my April appt and I should hear something within the next fortnight. I've not used the Sumatriptan as I've not had an attack since being prescribed them. In my headache diary since having these random episodes I have completely re-evaluated my migraines: What I though was an 8 out of 10, are more like a 6 compared to the other pain I had. It's definitely put a different perspective on pain levels for me. Reading comments has also made me very appreciative of my GP practise who prescribed the injections straight away, and want to see me after my Headache Specialist Neuro appointment to discuss any other options. I certianly am blessed there.  I do feel a fraud compared to others who really are suffering and so appreciate you taking the time to reply. Wishing the best to all.

Tue, 19/03/2019 - 21:02
DavidH 7
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Last seen: 1 month 1 week ago
Joined: 26/02/2014 - 15:13

I'd encourage you not to "feel a fraud".  That helps no-one and I'd imagine that everyone here would be glad for anyone who was finding the experience less horrific.

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