Hello,
I am new here and new to cluster headaches. I have only had them for 5 weeks but already feel like I can’t cope with it. I have epilepsy and migraines too and with the combination of all three life has become a nightmare. I have been off work for the last 5 weeks and can’t see how life will ever return to normal. The pain is unbearable I have a great support team how have me on treatment already including oxegen and medication but nothing is helping. I know many of you have been suffering for years and I’m only weeks but I can’t cope if it last years. Someone to talk to who gets the pain might help I don’t know. Thanks Laura
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Submitted by Dorothy on Wed, 30/05/2018 - 08:31
PermalinkHi Laura
Hi Laura
Sorry you had to join us but welcome.
I'd recommend giving our helpline a ring and having a chat. They all understand what you're going through. Leave your details, they'll ring you back free of charge.
All the best to you.
Dorothy
Joined: Sun, 21/08/2022 - 23:10
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Submitted by arualno1 on Wed, 30/05/2018 - 10:12
In reply to Hi Laura by Dorothy
PermalinkThank you for responding I
Thank you for responding I will give them a call today. Would be nice to talk to someone who understands what it’s like.
Joined: Sat, 15/08/2026 - 19:41
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Submitted by Dorothy on Thu, 31/05/2018 - 21:42
In reply to Thank you for responding I by arualno1
PermalinkGreat, I'm sure you'll feel
Great, I'm sure you'll feel better for a chat with any one of them. Have a good browse round the website and look in downloads for handy printouts.
Let me know how you get on X
Dorothy
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Submitted by arualno1 on Mon, 04/06/2018 - 08:33
In reply to Great, I'm sure you'll feel by Dorothy
PermalinkYou were right very helpful
You were right very helpful chatting things through with someone. It is still all new too me but I am starting to get my head around the diagnosis.
Joined: Sat, 15/08/2026 - 19:41
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Submitted by Dorothy on Tue, 05/06/2018 - 18:37
In reply to You were right very helpful by arualno1
PermalinkAh that's good. It always
Ah that's good. It always helps to have a good chat about it with someone who understands. So glad you rang them. Welcome to your CH family. Watch out for the next conference to be announced for the autumn and hopefully you can come and meet us!
Dorothy