OUCH(UK) Organisation for the Understanding of Cluster Headache

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#1 Sun, 27/05/2018 - 16:53
arualno1
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New here

Hello, 

I am new here and new to cluster headaches. I have only had them for 5 weeks but already feel like I can’t cope with it. I have epilepsy and migraines too and with the combination of all three life has become a nightmare. I have been off work for the last 5 weeks and can’t see how life will ever return to normal. The pain is unbearable I have a great support team how have me on treatment already including oxegen and medication but nothing is helping. I know many of you have been suffering for years and I’m only weeks but I can’t cope if it last years. Someone to talk to who gets the pain might help I don’t know. Thanks Laura 

Wed, 30/05/2018 - 08:31
Dorothy
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Joined: 19/02/2014 - 10:16

Hi Laura

Sorry you had to join us but welcome.

I'd recommend giving our helpline a ring and having a chat. They all understand what you're going through. Leave your details, they'll ring you back free of charge.

All the best to you.

Dorothy

Wed, 30/05/2018 - 10:12 (Reply to #2)
arualno1
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Thank you for responding I will give them a call today. Would be nice to talk to someone who understands what it’s like. 

Thu, 31/05/2018 - 21:42 (Reply to #3)
Dorothy
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Great, I'm sure you'll feel better for a chat with any one of them. Have a good browse round the website and look in downloads for handy printouts.

Let me know how you get on X

Dorothy

Mon, 04/06/2018 - 08:33 (Reply to #4)
arualno1
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You were right very helpful chatting things through with someone. It is still all new too me but I am starting to get my head around the diagnosis. 

Tue, 05/06/2018 - 18:37 (Reply to #5)
Dorothy
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Ah that's good. It always helps to have a good chat about it with someone who understands. So glad you rang them. Welcome to your CH family. Watch out for the next conference to be announced for the autumn and hopefully you can come and meet us!

Dorothy

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