Hi from a newbie
Hi from a newbie
Just joined and although I am new to this site, I am no stranger to cluster headaches.
I had my first cluster headache at the age of 15, I am now 29 and have spent the last 14 years pretty much alone with the condition as nobody can fully appreciate how painful and disruptive CH's can be. I have been on Propanalol hydrochloride (160mg) since diagnosis soon after my first headache and have tried several abortives such as sumatriptan and diclofenac but they don't seem to work once a headache has set in. I have assumed that the Propanalol has reduced the frequency/intensity of the CH, although I can't know this for sure.
I am happily married and have been in 'remission' for the last 6-7 years; coincidentally my last bout was around 6 months before I met my wife, so she has yet to experience me at my worst.
My clusters have generally set in around October-Dec in the past and during my cluster free period, I have occasionally had 'shadows' (I think that's what you guys call them?) where it feels like a headache is coming on but fortunately fades away.
However, in the last 2 weeks these shadows have become more frequent up until this morning where I had my first real cluster headache in many years. It lasted only 40 minutes and wasn't the worst I've ever had but it did put me back into bed so I ended up starting work an hour late! I have had a tingle on and off all day and I am now just awaiting the return of the CH later on tonight or tomorrow morning - fingers crossed it won't happen.
I have joined here in the hope that I can change the way I manage the headaches and find out how other sufferers manage their jobs/normal life during a cluster.
I'll stop my already too long introduction here and post more (to get it off my chest) in the coming days. I look forward to the advice and support that I am sure I will find here.
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