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Help and advice needed for constant ''shadows''

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#1 Tue, 09/02/2016 - 10:56
Cee
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Last seen: 8 years 1 month ago
Joined: 05/02/2016 - 14:40

Help and advice needed for constant ''shadows''

Hi All,

I'm currently on my 8th day out of 14 of the 40mg of Prednisolone per day that I've been prescribed and i've not not had an 'attack' in 2 days (Hooray!) but i'm suffering with constant high level pain behind my left and and back of head on the same side and it's making me want to throw myself against a wall, it just sits there all day being milder on a morning and gradually getting more savage towards the evening (I've been having attacks at 6pm each night up until the other day when that stopped happening out of nowhere but I tried using Oxygen just before 6pm to see if I could stave it off). I don't know if it's worth mentioning but my left pupil (the side of my pain) is constantly bigger than the other side too. 

I got told the oxygen and imigran injections are only for aborting an attack so I guess I can't use these to help with the pain that just sits there all day making life miserable?

I almost prefer the attacks because then I can stick myself with a needle, hop on the oxygen and find relief - with this I just don't know how to get relief and it's really distressing. 

Please if anyone can offer any advice I could really use some, it's going to be a few weeks before I get to see the specialist again now and I feel quite alone in trying to figure it all out. I was only saw the specialist for the first time on 1st of this month. 

Also on Topiramate that started at the same time as the pred, increasing dose each week, but that doesn't seem to be doing anything other than making my hair fall out, my feet turn blue, and I can't pick anything up without dropping it because my hands are so numb! 

Thank You in advance for any help 

Caroline x 

Tue, 09/02/2016 - 18:21
chrisb2
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Last seen: 4 years 7 months ago
Joined: 23/01/2016 - 07:13

Hi Cee

On days like these I tend to use the O2 as soon as the pain increases to  the point where I cannot properly function and also a 50mg or 100mg imigran tablet which works more often than not..mostly reducing the pain to an "acceptable" level. Of course the real problem comes later when a big attack comes along and you need that injection. It is a delicate balancing act some days

Best of luck

 

Wed, 10/02/2016 - 10:56
Cee
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Last seen: 8 years 1 month ago
Joined: 05/02/2016 - 14:40

Hi Chris,

nice to meet you and thank you for the reply. They've taken the tablets off of my prescriptions now they've given my the injections so I haven't got access to both. Hmmmm. 

I seem to be better when I wake up and then gradually get in more pain as the day goes on, then at 6pm I usually get hit. That's the pattern seems to be falling in. Then I'll have days where I'm in more pain all day long but won't get hit. 

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