A bit puzzled...
A bit puzzled...
Hi. I’ve suffered from episodic CH since 2005 and while I admit that I’ve read these pages a lot for support I’ve never posted before. Perhaps that has been selfish, but I guess we all have our own way of dealing with this misery.
Anyway, I have a question. Every episode has been longer and frankly worse than the prior one and honestly I’m not sure how I’ve made it through some days (nights really). Anyway, my last cluster was different to anything I’ve had previously and with the exception of a few really brutal attacks which scared the life out of my new colleagues (and the predictable loss of sleep) the pain was manageable (let’s call the average a kip 5). 2 weeks later, the cluster was over Way less pain than normal and 2-3 weeks shorter than my normal cluster. But with all of the other symptoms - my left eye was half closed, weeping and bloodshot, nostril blocked etc etc
Fast forward to the weekend just gone and I woke up on Sunday feeling fine. Quiet Saturday night with the family, no issues. 45 minutes after waking up (again this is not normal for me as that would typically be my best time of day during a cluster) and my old friend started digging into my eye and trying to rip the side of my face off. Then it stopped. Since then I’ve had a fairly consistent niggle and a series of attacks, but none of them have gone past a 3, perhaps a 4 this evening.
Anyway, after this long winded ramble I was just wondering if anyone else has had the same thing? Obviously I’m hoping that I’m coming to the end of the misery (or as it stands right not the terrifying threat of if) but it seems odd. Any thoughts/help would be great
On a more personal level, while my clusters are brief (up to 5 weeks) and not that frequent (worst case, annually) you all give me hope and strength. I know what this does to me and Your unknowing support has probably kept me here
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