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Am I a chronic CH sufferer?

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#1 Tue, 03/06/2014 - 12:40
Boomshakalacka
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Joined: 07/04/2014 - 10:08

Am I a chronic CH sufferer?

Hi there folks.

 

I hope this finds you all as pain and trouble free as possible!

 

I am 16 weeks into my first bout. I have Sumatriptan (AMAZING!) and Oxygen (Also AMAZING!), so treatment works 95% of the time... a figure I can live with!

 

However, 16 weeks down the line I am still getting between 14 and 18 attacks each week, ussually 2-3 per day.

 

What I want your opinion on (I am seeing Neuro again soon!) is do you think I am chronic?

 

Cheers folks

 

Chris x

Tue, 03/06/2014 - 13:01
Phil
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Joined: 26/02/2014 - 17:02

Chris. Episodal cluster headaches can go on for ages, I'm Episodal and my last bout was 9 months with a 2 week remission. Chronic is pretty much all the time, year after year.
Here's hoping it ends soon.

_________________________________________________________________________ Yeah I know, my coat's already on.

Wed, 04/06/2014 - 19:58 (Reply to #2)
Mike
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Joined: 21/03/2012 - 12:43

Yep it goes on year after year after year I think we are all episodic.............try 23 years in cycle! Ive been out of cycle now for six months.

 
 
 
Chairman OUCH UK

Thu, 05/06/2014 - 12:31
Phil
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Joined: 26/02/2014 - 17:02

Congrats Mike. I would've just slept those 6 months.
REM sleep was almost scary after my, relatively short, 9 months.
Took a while to get used to the confused waking from deep sleep again.

_________________________________________________________________________ Yeah I know, my coat's already on.

Fri, 06/06/2014 - 11:34 (Reply to #4)
Mike
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Joined: 21/03/2012 - 12:43

Thanks Phil, not something that derserves congratulations for :)

In latter years I really did find sumatriptan before sleeping a godsend.

 
 
 
Chairman OUCH UK

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