just a quick thankyou for the conference yesterday
11years since Cambridge,so was lovely seeing old faces,and thankyou all the people i met who were so welcoming to me and my son Stefan.
great to see that more hospitals and more doctors seem to offer more hopes of some relief to us all.
special thankyou to Val,and thanks to the Prof for all that you have done for us all,and that you are yet to do.
looking forward to life a little bit more after yesterday
Dave-the one they call Tractor boy,from the land of the rising sun......----




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Submitted by Tractorboy on Tue, 11/07/2023 - 11:20
Permalinkwow-i can hear the wind
wow-i can hear the wind whistle and see the tumbleweed blow.
i dont do Facebook,but please,if an admin sees my post above could they cut and paste it onto the OUCH facebook-i just wanted to say thankyou to everybody
Dave
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Submitted by Colin Allen Vi… on Tue, 11/07/2023 - 13:48
PermalinkThanks,Dave,it was good to
Thanks,Dave,it was good to see you and your son on Sunday.
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Submitted by Cocksy120 on Tue, 11/07/2023 - 14:23
PermalinkMy first visit to event on
My first visit to event on Sunday, and would like to say thanks to those involved.
Great to hear from the professors involved, and to hear from other sufferers, shows we are not alone.
Look forward to the next event
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Submitted by Tractorboy on Tue, 11/07/2023 - 17:33
In reply to My first visit to event on by Cocksy120
Permalinkive got an appointment with
ive got an appointment with my GP clinical pharmacist to get hold of 3mg Sun jabs.
without you Colin i wouldn't have known.
thankyou
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Submitted by Dorothy on Tue, 11/07/2023 - 23:23
PermalinkThat's great for us to hear!
That's great for us to hear! Thank you for your comments and for attending. It's very rewarding to know that sufferers left at the end of the day feeling supported and more hopeful. We hope you'll be there for the next one.
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Submitted by Dorothy on Tue, 11/07/2023 - 23:54
PermalinkDave, I'm an admin on fb. I
Dave, I'm an admin on fb. I'll do that for you. Sorry for the late reply, we were travelling home yesterday. I remember meeting you on Sunday and I'm delighted you feel it was a worthwhile day for you.
Dorothy
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Submitted by Colin Allen Vi… on Wed, 12/07/2023 - 10:03
PermalinkDon't forget to ask for
Don't forget to ask for Frovatriptan!