Hi there!
would love to know other peoples experience of explaining their conditon to others. I often get mixed reactions due to a lack of understanding of the seriousness and the detrimental effect it has on someone who suffers. How do you explain the condition and do you know any resources that I can give people to help them understand? Tired of people telling me I'm over reacting to a migraine --
Thank you all
maddie
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Joined: Sun, 02/02/2025 - 21:48
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Submitted by DavidH 7 on Sun, 20/06/2021 - 21:24
PermalinkAt work, I email the relevant
At work, I email the relevant link in the FAQs at the top of the page but with some explanation/context.
Mostly, I guess, I want people to know that there will be times when a) I can't be wise or make wise decisions (because of drugs and/or pain) and b) I really need to just be left alone - there are two people at work who will make sure I'm safe and, for example, can get home if I need to ... but everyone lets me get on with it, which is how I like it to be.
Do you have a sense of what you want people to know or understand?
Joined: Sun, 13/09/2026 - 09:49
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Submitted by Dorothy on Mon, 21/06/2021 - 07:49
PermalinkHi Maddie
Hi Maddie
Here's a download to print out which is aimed at explaining the condition to friends, family and work colleagues https://ouchuk.org/downloads
Hope this helps.
Dorothy