Hi Folks,
You may be interested in this petition to have Chronic and Hemiplegic migraines classed as a disability for ESA and PIP claims.
You may suffer, know someone who suffers or just think its a worthwhile campaign. When I'm not in a cluster I get severe chronic migraines so have put my signature to it.
https://you.38degrees.org.uk/petitions/chronic-hempigenic-migraines-to-…
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Submitted by darren h on Fri, 28/08/2015 - 13:10
Permalinkhi have signed too, this
hi have signed too, this could have our condition better under stood and we may have boxes to tick on the benifits form that fit our condition!! well done finding this one, have you found your different view yet? all the best d
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Submitted by anitaspaul on Fri, 28/08/2015 - 13:40
Permalinkadded my signature also bad
added my signature also bad enough having mad heads without the added stress of a case of ids
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Submitted by Lorraine on Fri, 28/08/2015 - 19:51
In reply to added my signature also bad by anitaspaul
PermalinkI gather ids can be deadly...
I gather ids can be deadly...
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Submitted by anitaspaul on Fri, 28/08/2015 - 20:26
PermalinkFor anyone taken off benefits
For anyone taken off benefits and forced into work yes or looking at pictures of his bald slap head brings on a nauseous feeling which triggers some chronic headaches :)
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Submitted by MissKittyB on Sat, 29/08/2015 - 10:36
In reply to hi have signed too, this by darren h
PermalinkI came across the petition
I came across the petition quite by accident whilst I was looking at info on the ESA to JSA statistics. 90 people a day die after being found fit for work which, if taken at face value, is a shocking statistic (the DWP of course say there is no correlation).
I am still looking for my different view. In yesterdays free paper there were some 'day trips by coach to the seaside', which I rather fancy. I like the idea of a flask of tea, some cheese and pickle sarnies and a tartan blanket for my knees incase it gets a bit nippy!
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Submitted by MissKittyB on Sat, 29/08/2015 - 10:38
In reply to For anyone taken off benefits by anitaspaul
PermalinkHaha, like it :-)
Haha, like it :-)
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Submitted by anitaspaul on Sat, 29/08/2015 - 10:50
PermalinkIrritable duncan smith should
Irritable duncan smith should be a classified brain disorder with high rate pip and esa support group gives me a gippy stomach just thinking about him transparency he should be completely invisible
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Submitted by anitaspaul on Sat, 29/08/2015 - 10:52
Permalinkgood morning btw kitty a
good morning btw kitty a lovely cool crisp day sunny blue skies for now winter round the corner no more hot head :)
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Submitted by MissKittyB on Sat, 29/08/2015 - 17:56
In reply to good morning btw kitty a by anitaspaul
PermalinkHelloooo Hot head? Tell me
Helloooo
Hot head? Tell me about it.
Have you tried using a MigraCap? Just do a quick Googly to find it.
It is basically a little beanie hat
that has gel bags sewn into it. You pop it in the fridge (actually I put mine in the freezer as I need 1 degree above absolute zero) and then, when the brain feels like its doused with sheets of napalm, you just pop it on and reeelax.
It is ridiculously expensive for what it is (about £35) BUT I find that it does help quite a bit. I got one because I havent got enough hands to hold bags of frozen peas against all of my sore spots. It has got a little flap on the front that covers and cools the eyes as well.
You look a bit of a nana wearing it, but do we care..??
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Submitted by Harrietjt on Sat, 29/08/2015 - 18:17
PermalinkYou guys are making me
You guys are making me laugh..... IDS syndrome, nasty.
Never heard of a migracap, but have just bought one on amazon this minute for Pete to try. Also recently bought this for him, he finds it good until he reaches 9/10 on the Kip scale, at which point every tiny sound or air movement is unbearable; soothing on the way back down the other side too.
www.amazon.co.uk/gp/product/B00Y9LJHT6?psc=1&redirect=true&ref_=oh_aui_…
H
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Submitted by anitaspaul on Sat, 29/08/2015 - 18:22
PermalinkFeel like a constant hot
Feel like a constant hot flush haven't been able to stand the heat ever since my 1st bout of clusters back in 1993 when they and my stomach problems began though it's been a lot worse in the last 2 or 3 summers than after my trip to durban though i loved it there not only how beautiful it was but spending time with my Anita the heat there was so hot n sticky my bp shot up so now have high bp and fatty liver along with these funky migrainus horriblus have day's where i don't feel so bad than day's where i feel like total hot rotton garbage can't wait to get on the medication to see if it gets all under control as my hearts desire is to get back to durban and my Anita was just looking at them masks on amazon a bit cheaper on there
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Submitted by anitaspaul on Sat, 29/08/2015 - 18:23
PermalinkOk weirded i just came off
Ok weirded i just came off amazon hehe :)
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Submitted by anitaspaul on Sat, 29/08/2015 - 18:24
Permalink*x files music plays in
*x files music plays in background* :)
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Submitted by anitaspaul on Sat, 29/08/2015 - 19:06
PermalinkWas looking at a cold eye
Was looking at a cold eye mask for 6 quid on there and a couple book's truth about pain and one with a very cool title called the migraine mafia will look into that fan as i love cool air blowing over me but have been told that sleeping in a draft can cause neck pain
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Submitted by Harrietjt on Sun, 30/08/2015 - 08:04
PermalinkIDS = Insuficient Disability
IDS = Insuficient Disability Sense
any others?
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Submitted by anitaspaul on Sun, 30/08/2015 - 08:31
Permalinkinsane demented schizophrenic
insane demented schizophrenic
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Submitted by anitaspaul on Sun, 30/08/2015 - 09:04
Permalinkinsufficient dunce senseless
insufficient dunce senseless
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Submitted by anitaspaul on Sun, 30/08/2015 - 09:05
Permalinkirritating dumb sucker
irritating dumb sucker :)
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Submitted by MissKittyB on Sun, 30/08/2015 - 09:18
In reply to You guys are making me by Harrietjt
PermalinkI like the look of that fan.
I like the look of that fan. When I'm awake at 4.12am (precisely), the same temperature and colour as a boiled lobster, I'm currenly sponging myself down with a damp cloth. The fan seems much more civilzed!
MissKB
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Submitted by MissKittyB on Sun, 30/08/2015 - 09:26
In reply to IDS = Insuficient Disability by Harrietjt
PermalinkI had a bully of a boss a few
I had a bully of a boss a few years back who liked to haul me into his office for a dressing down every time I was off with another 'headache'.
He was a miserable B*** and clearly suffered from Irritable Growl Syndrome.
Hohohoho!
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Submitted by anitaspaul on Sun, 30/08/2015 - 09:30
Permalinkhohohohoho ? is it Christmas
hohohohoho ? is it Christmas already got me dreaming of rolling around naked in the snow :)
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Submitted by MissKittyB on Sun, 30/08/2015 - 09:40
In reply to hohohohoho ? is it Christmas by anitaspaul
PermalinkI say! Steady in old chap.
I say! Steady in old chap. That seems to be an extreme solution to the hot flushes te hee.
It is only 116 shopping days to the Great event.....
so I'm off now to put the spouts on.
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Submitted by anitaspaul on Sun, 30/08/2015 - 09:47
PermalinkI say less of the old im more
I say less of the old im more n og fly fresh 2 def mofolo from the streets of london never moved with them fat cameron Insane in the membrane Demented eton School old chap types but you can check me in the hood heh heh ;)
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Submitted by anitaspaul on Sun, 30/08/2015 - 11:54
PermalinkInane Demonic Slaphead
Inane Demonic Slaphead
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Submitted by anitaspaul on Sun, 30/08/2015 - 14:59
PermalinkInept Disconcerting Shit
Inept Disconcerting Shit
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Submitted by darren h on Mon, 31/08/2015 - 20:00
In reply to Helloooo Hot head? Tell me by MissKittyB
Permalinkhi the hat suonds realy good,
hi the hat suonds realy good, and worth it as i over heat alot, one time i grabed a somthing out the freezer to hold aganst my head it was a choccky pud so it defrosted, aft the attack i had to eat it realy, not a bad result, the sea side sounds great idea you enjoy what ever the wether your free from that boss now perhaps send him a post card,
keep smiling d
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Submitted by anitaspaul on Wed, 02/09/2015 - 00:57
PermalinkNo longer have a case of ids
No longer have a case of ids but I'm betting mr duncs has the runs little shit he is should be locked up in a cess pit where he belongs he'll be in his perfect environment then ;)