What happened to DBS ?

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duetto

Joined: Sun, 26/06/2016 - 22:12

Last seen: 10 years 2 months

Submitted by duetto on

over a year ago or more on the prev ouch web several people were having DBS then it all went quiet when the new ouch web was put up and running.

I was wondering if the reader from London Ontario and dave the tractor driver [I think from essex] are getting on with their DBS or anyone else.

courious as to feedback has it been a good result or disappointment.

 

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Tonythetiger

Joined: Tue, 12/07/2016 - 11:21

Last seen: 10 years 2 months

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Hi Duetto, I think you are referring to Tom, from Canada.  He has a fantastic blog and I've recently become friends on Facebook with him.  He is a truly inspirational man. 

Am I allowed to put up a link to his blog on here?

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BAZ17

Joined: Sun, 04/07/2021 - 08:21

Last seen: 5 years 2 months

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I had a DBS put in in 2012 and it took about a year to get the settings right, a matter of trial and error.  I then went for a whole year without a headache until January of this year. Unfortunately the headaches started to come back and by March I was having up to 14 a day.  Since then I have had adjustments to the settings and am trialling a vagal nerve stimulator which has brought the number of headaches down to 5 in 24 hours. Still not as good as I'd like but an improvement. I have everything crossed that it will improve even more.  

 

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duetto

Joined: Sun, 26/06/2016 - 22:12

Last seen: 10 years 2 months

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BAZ thanks for posting, I am sure that clusters have a way of getting round preventative measures what ever works only seems to be temporary and with me migraines take up the void till the clusters return.

 

 

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