Bit of a weird topic but having just been diagnosed with Lymphoma, I wondered if such a traumatic illness affects the outcome or indeed the pattern of cluster headache?
I am a 54 year old sufferer (since 1990). Bouts are getting longer for me (4 months) but remissions also getting longer (2 years +). I respond well to oxygen / imigran and eventually to Verapamil after it's built up enough in your system.
My cancer diagnosis is not great. It's a rare Lymphoma called Non Hodgkins Mantel cell. I'm already at Stage 3 and the prospect of a likely spell of chemo lasting 6 months doesn't thrill me. This particular cancer is rarely curable, you just suppress it but I guess it eventually wins.
I had a colleague who also suffered from cluster headache. He then got Guillane Barre Syndrome which was very serious and left a lasting impact on him, but he never suffered another cluster bout.........he was 64 when he was diagnosed with GBS.
So I wondered if anyone knew of similar instances where a more seriuos illness snuffed out the clusters?
I can't imagine suffering another bout in 2 or 3 years time which clashes with cancer treatment. It's unimaginable and really haunts me. To combat clusters, I've had to stay strong, fit and positive but I think I need all that to withstand the chemotherapy now (which would be repeated at variuos intervals to keep the lymphoma under control).
Life can be an utter bitch at times.




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Submitted by ElizabethK on Fri, 03/02/2017 - 08:58
PermalinkHi Mark,
Hi Mark,
I am so sorry to hear about your diagnosis. Personally I have not come across a case of CH disappearing due to another major condition. Have you told your Neurologist about your cancer? If not I would urge you to do so, and have a good discussion with them as to how you can prepare for your next bout. Have you ever had nerve blocks?
take care
Liz