OUCH(UK) Organisation for the Understanding of Cluster Headache

Donate

Advice Line

0800 6696 824

London neurologist

3 posts / 0 new
Last post
#1 Fri, 24/12/2021 - 10:48
Madz123
Offline
Last seen: 1 year 5 months ago
Joined: 21/05/2021 - 10:47

London neurologist

Hello,

Due to no treatment being effective for my cluster headaches I have been referred to London for the top expert in headaches. There has been talk of an operation and I was just wondering if anyone has been through this? Or if anyone know of any other med that the ones listed below I can try before the surgery? 
gabapentin 
Verapamil
Tropimate
Sumbtripimate (tablets. Nasal spray and injections)
Codine
Tramadol
Oxygen
Lithium
Optic nerve block
Steroids
Melatonin
Lidocaine patches
Zanopin
Diazapan
gammacore 

 

Thu, 20/01/2022 - 09:34
ElizabethK
Offline
Last seen: 1 week 2 days ago
Joined: 26/02/2014 - 14:26

Have you been able to try GammaCore?  It is an external device for Neurostimulation.  It is good news that you will be seeing a specialist in headache.

I am assuming the surgery you refer to is ONS (Occipital Nerve Stimulation).  I have ONS and it has changed my quality of life very much for the better!  Please fire away and ask any questions you have and I will do my best to answer them. Please be aware that most get a good result from this procedure but not everyone does!

Thu, 28/09/2023 - 11:42
rainbowroses
Offline
Last seen: 1 month 3 weeks ago
Joined: 28/09/2023 - 11:19

Hi, I'm being seen by a specialist in headaches in London too. I found Gabapentin to be helpful, as well as Gammacore. 

Login to add comments

Share This

© OUCH(uk) 2024 | email: info@ouchuk.org
Registered Charity No. 1091919 | Registered in England Company No. 04339368