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London neurologist

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#1 Fri, 24/12/2021 - 10:48
Madz123
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Last seen: 1 month 5 hours ago
Joined: 21/05/2021 - 10:47

London neurologist

Hello,

Due to no treatment being effective for my cluster headaches I have been referred to London for the top expert in headaches. There has been talk of an operation and I was just wondering if anyone has been through this? Or if anyone know of any other med that the ones listed below I can try before the surgery? 
gabapentin 
Verapamil
Tropimate
Sumbtripimate (tablets. Nasal spray and injections)
Codine
Tramadol
Oxygen
Lithium
Optic nerve block
Steroids
Melatonin
Lidocaine patches
Zanopin
Diazapan
gammacore 

 

Thu, 20/01/2022 - 09:34
ElizabethK
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Last seen: 1 day 15 hours ago
Joined: 26/02/2014 - 14:26

Have you been able to try GammaCore?  It is an external device for Neurostimulation.  It is good news that you will be seeing a specialist in headache.

I am assuming the surgery you refer to is ONS (Occipital Nerve Stimulation).  I have ONS and it has changed my quality of life very much for the better!  Please fire away and ask any questions you have and I will do my best to answer them. Please be aware that most get a good result from this procedure but not everyone does!

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