Hi
Just wanted to say hello. I was luckily (?!) diagnosed with CH very quickly: went to GP in December, got confirmation from the Neurologist in February.
It appears I'm still in cycle having had no more than few days reprieve. And what a fun and dramatic few months it's been! Tears, head-banging (Not the fun Slayer kind), insomnia, work anxiety and slips into depression.
I'm still trying to decide which side quest is the most fun: the Sumitriptan injection lottery OR trying out the well meaning suggestions from friends and aquintances; 'Yes I did try hugging a tree barefoot and no, I still felt my brains trying to surge forth through my eyeball'
I think, I just wanted some reassurance on the typical length of some other members' bouts?
I have 3 children, one of whom is 7 months old and I work as a teacher - it's been a struggle. I'v bounced around OH, and being signed off for a week only to return a few days and then it all begins again. Stress and loud noise seem to make me more prone to attacks. Given my personal situation kinda feel this is like a fish who says he doesn't like to get wet.
I'm cautiously upping verapamil due to low heart rate but hope it can prevent the frequency. Attacks are less intense once I take a sumitriptan injection but occasionally I enjoy a real tear jerker regardless. Between attacks I often feel generally unwell, exhausted and grumpy. My wife and kids deserve a medal for patience...
I know there's some light at the end of the proverbial but was hoping for some shared experience on how other members cope and what to look out for.
Thanks



