ECH
ECH
I am beginning to get slightly worried and wondered if someone could help please. I was diagnosed in December 2015 as being ECH and since then have been keeping a diary of my CH. It turns out that I am getting a CH at least once every two weeks sometimes two or three times a day during that two week period. I am finding this rather odd as I was given to understand that ECH meant that you had a CH for a few weeks and then a long period of remission before the next bout started. This is just not happening. I am also getting shadows, sometimes very painful shados in between. I take Sumitriptan injections as and when I need them and also I take 25 mg of Topiramate in the morning and 50 mg at bedtime. I also take manesium supplements every day. I will shortly be seeing my Neurologist and will show him the diary but wondered if someone could please give me some advice as I am beginning to panic. The CH are getting worse and I don't know what to do. Thank you for reading this.
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Hi Mandy
Its quite possible that you will be classed as CCH from what i can read,as the breaks are not longer than 28 days? .
I would ask for oxygen as an abortive too when next seeing your neuro as it is a 'no limits' medication and has no side effects, it will also help more on the days where you have multiple attacks
Hope this helps
Ian
(zanycheff)
Thank you Ian - Will go and have a word with my GP (who is excellent) and see what she thinks I should do next. Not due to see the Neurologist again until July.
the forms needed to be filled out for the oxygen called HOOF are available to download on this site
Ian
(zanycheff)