I am beginning to get slightly worried and wondered if someone could help please. I was diagnosed in December 2015 as being ECH and since then have been keeping a diary of my CH. It turns out that I am getting a CH at least once every two weeks sometimes two or three times a day during that two week period. I am finding this rather odd as I was given to understand that ECH meant that you had a CH for a few weeks and then a long period of remission before the next bout started. This is just not happening. I am also getting shadows, sometimes very painful shados in between. I take Sumitriptan injections as and when I need them and also I take 25 mg of Topiramate in the morning and 50 mg at bedtime. I also take manesium supplements every day. I will shortly be seeing my Neurologist and will show him the diary but wondered if someone could please give me some advice as I am beginning to panic. The CH are getting worse and I don't know what to do. Thank you for reading this.
ECH
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Submitted by zanycheff on Sun, 01/15/2017 - 16:16
PermalinkHi Mandy
Hi Mandy
Its quite possible that you will be classed as CCH from what i can read,as the breaks are not longer than 28 days? .
I would ask for oxygen as an abortive too when next seeing your neuro as it is a 'no limits' medication and has no side effects, it will also help more on the days where you have multiple attacks :)
Hope this helps
Ian
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Submitted by Mandy on Tue, 01/17/2017 - 08:38
In reply to Hi Mandy by zanycheff
PermalinkThank you Ian - Will go and
Thank you Ian - Will go and have a word with my GP (who is excellent) and see what she thinks I should do next. Not due to see the Neurologist again until July.
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Submitted by zanycheff on Tue, 01/17/2017 - 09:11
Permalinkthe forms needed to be filled
the forms needed to be filled out for the oxygen called HOOF are available to download on this site :)
Ian
(zanycheff)