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OUCH(UK) Organisation for the Understanding of Cluster Headache

DARREN HAMILTON - ROAD TRIPS WITH A CLUSTERY VIEW

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#1 Wed, 29/11/2017 - 14:32
Dorothy
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DARREN HAMILTON - ROAD TRIPS WITH A CLUSTERY VIEW

 

hi all heres my trip to Hull, new clutch in the cluster bus, cch a little better time to go see me mum,, and meet few more chers in my home town,, first cher i met up with is col adjei, we both hull lads and had good time catching up after meeting in snowdon in the summer, it was good to see you again col,, next cher i met up with was Heather Crawley what a lovley cher, we chatted put the world to rights and spent a little time shareing our storyes, and yes Heather good idea to try arrange few more of us next time, so 2more chers had a little trip in the cluster bus, well i couldent let a lady walk home now could i? few more odd jobs done for me mum then on the road home stopping in Lincon to meet up with Michelle Tabitha Bridge we met by the cathedral, i like the sundial on the south side, Michelle showed me a realy cool stone carving on the side ive never seen befor,, we went for a coffee and chat, and enjoyed a little time together, im sure we will meet again,, back on the road again heading south and home, till next time,,

 

 

 

CLUSTERHEAD ? blush

 

 

 

 

2ND CAMP CLUSTER - NEW FOREST    hi all,, time to catch up my cluster bus road trips,,  its been a ruff year as the prevents made me so ill and cpouldent think srate the rite things up, so here is 2nd camp cluster in the new forest,, round hill camp site in late sept, the wether was realy warm, the forest was in full deep green of summer still, piched up amongst the trees the quiet of the forest soon sinks in after the constant noise of living next to the m3 fades, saterday started early with ponies wandering passed and a curious foal came to have a look in my tent,, as did a large gang of pigs, some of the larger sows using my landy as an ass scratching post befor rolling in the mud,, i was visited by moira ann harker and her fella, ( another biker) we spent few hours chatting and just enjoying being here, my cooking isnt much better altho i made a cracking sasage sarnie on the burner, as darkness fell i nearly got run over by some ponies galloping across the campsite in the dark, sorry i didnt get a pick of moira,, maybe next time,, it was good little trip for me just to get out and have an attack with i different view and meet new facs,, heres the picks,,  

 
 
 
 
 
 
 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Wed, 29/11/2017 - 14:34
Dorothy
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NORTH TO DERBY

Hi all, a very special cluster bus road trip indeedy, this is the first time a cher has come along for a day out, so heading north to derby to meet up with Gearardine and her family, a wonderful young lady with sadly so meny painful medical complications as well as cch, o2, suma and plenty of munchies packed with the useual kit as well, im cruseing up the m1 to a place I found on google maps out the way near a river under some trees to shade me in the morning, all peace full, apart from my 1.30 attack and a screechy owl that had a lot to say, sun up beans an coffee , with bemused early morning joggers and dog walkers, yes i had sleeping bag hair,, i caught up with gearadine around 11.30 ish, so coffee and catch up, it was good to have healty conversation, and her insight like her wisdom shone through her smiles, meds o2, ice packs ect we jump in the cluster bus and head for the country park,, trying my best to smooth out the bends avoid pot holes (not the first lady with fybro ive given lifts to but the first cher) we arrived , the park was lovley, path ways amongst the trees, victorian rock follys around the pond, we wandered chatted, pondred each others points of view, the day was warm, humid by the pond where fish swam lazly at the surface, we followed the path in dappled pools of sun light , dust motes hung in the air, the heady smell of roadadmderons in bloom, the pair of us enjoying the sun but sticking to the shade, smiles and sunglasses, at the castle we missed the tea room, so looked for the ornimental gardens, wandered through mixed woods planted 200years ago,, monkey puzzel here and there, mullbury trees, and a healthy oak standing proud in a paddock its companion of the centurys now cut down , on we strolled past the pond where we were bedeviled by candaian geese gathered on the lawns hisst as we pasted, i remined them of the food chain,and all was well, we eventulay found the walled garden, it was shut , being a gentalman i offered to help with a shin up over the wall, but the lady declined,, we occasinaly sat and rested and chatted in a languidge that only chers realy under stood, speeking of shadows numbers and triggers at benches around the park, I was deeply hounered and heart broken to hear gearadines pain full story, but learned so much from her uneek point of view putting my own life in real perspective for the first time regards cluster and my journey with cluster, I now count myself very lucky im only cch get attacks most every nite, but I do have good days, im not permantly bed bound or wired to a machine, so I try to make the most of those pain free moments and live them to the full, now odd clouds drifting slowly passed so with shadows on the ground and shadows in our heads we head home ward,, it was heart warming to see gearadine out and enjoying, and heart breaking to know the pain she gos through so much every day, always good conversation and company, im always left feelin humble in a way, putting my own experiences in to perspective, with the setting sun and so much more to chat about, we say fair wells, miles to do time to think, alot of the things we talked about will be lost in time to my clustery brain, but if all i remember is gerardines smile, it will still be a good trip, dx

Wed, 29/11/2017 - 14:43
darren h
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hi Dorothy, thank you for posting this for me,, miles and smiles of my clustery road to no where, the only destination a smile shared,

Thu, 30/11/2017 - 11:28 (Reply to #3)
Dorothy
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What a lovely destination Darren, a smile shared...it's a pleasure to post your stories, they're beautifully written.

Dorothy

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