Are Cluster Headaches related to Fabry?

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Elizabeth Fairburn

Joined: Tue, 10/03/2026 - 08:30

Last seen: 6 months

Submitted by Elizabeth Fairburn on
Online
Elizabeth Fairburn

Joined: Tue, 10/03/2026 - 08:30

Last seen: 6 months

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Two years ago I was diagnosed with Cluster Headaches.  Two years prior to that, I was informed that the hereditory (sp!) disease Fabry was in my family.  Through mismanagement on both mine and the medical departments I was unable to get it confirmed whether I had it or not.

 It has now been confirmed that I am a carrier and am suffering from Fabry.  What I would be interested in, is has anyone else in the group got a family member with Fabry.  There are about 850 people in the UK with Fabry and I know it is quite hard to be tested for it, however, one of the "symptoms"  is "strange headaches"  and weight loss  as well as myriad of other problems .....

I am just wondering wether the two can be related?  Thank you for any feedback on this.

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