OUCH(UK) Organisation for the Understanding of Cluster Headache

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Posted: June 27, 2022

About the Study
We are a team of physicians and researchers at King’s College London studying the management of headaches within our healthcare system. We hope to evaluate patient experiences with headaches in the NHS at every level, from GP appointments to pharmacy and hospital visits. Our objective is to put together an accurate representation of the clinical headache pathway and identify pain-points and inefficiencies, to propose a system-wide redesign of the pathway more capable of adopting digital tools and technologies that can improve patient care.

Who can take part?
We are looking for individuals who have attended the healthcare system in any capacity for their headaches,...

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Posted: June 3, 2022

For the first time since the pandemic began, we are pleased to have been able to put together the first physical face to face conference for cluster headaches! 

Our team have been working hard in the background to create a welcoming and friendly event, where we can meet up to hear the latest news about cluster headaches. We look forward to catching up with old friends and making new ones. 

We will be at the London School of Economics on Sunday,18th September. 

Click Here to register and to get more information.

Posted: April 29, 2022

Evaluating the Treatment of Cluster Headache with Oxygen: A population-based study (ETCHO-1)

OUCH (UK) is pleased to be collaborating with the headache research team at King’s College London. The study above will expand to Scotland which will explore and develop our understanding of cluster headache.

This will be a questionnaire study with a telephone interview follow up. We endeavour that this study will help us begin to explore who are the cluster headache sufferers who find oxygen a useful treatment.

Oxygen users in the Scotland home oxygen region should look out for a letter asking if they would like to find...

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Posted: March 21, 2022

The National Institute for Health Research (NIHR) Maudsley Biomedical Research Centre has just released a report about its work on non invasive nerve stimulation for cluster headaches. This involved use of the gammaCore hand held device produced by the US company electroCore.  The research was conducted with OUCH's patron and chairman Professor Peter Goadsby and in collaboration with OUCH (UK).  For more information, please click the button below:

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Posted: December 7, 2021

Last year, the Board of Trustees chose Corin Ridout to receive this award. Corin regularly raised awareness and funds on behalf of his brother Glen, a cluster headache sufferer. Sadly, Glen passed away not long before Corin's virtual London Marathon but he was determined to carry on in Glen's memory. We felt that this was a wonderful example of going the extra mile that we've always associated with the Mike Pollock award and that he was a very deserving recipient.

The award was created in honour of our late, much missed chairman, Mike, who helped so very many cluster headache sufferers. It is meant to go to a CH hero in the UK - someone who has shown outstanding and compassionate support to cluster headache sufferers.

The...

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Posted: November 12, 2021

We're delighted to announce the 2021 OUCH (UK) Virtual Conference. It will take place on Zoom on Sunday 5th December 2021, 12pm - 4.30pm.

This is a free event for members with a £5 fee for non-members.

Find out more and book your place now!

 

Posted: November 3, 2021

The latest edition of our magazine CHit CHat has been published! Click the buttons below for the current and back issues.

Latest CHit CHat

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Posted: November 1, 2021

As part of this ongoing study, the next phase (our lab-based study) has now opened for recruitment.  We are currently looking for volunteers  (UK-only) aged 18-65  with chronic pain  conditions who would be willing to travel to the University of Warwick Campus (based in Coventry) to take part.

This lab-based study aims to understand the roles that mental defeat and mental victory have in underpinning different experiences of chronic pain.  If you agree to take part, you will be invited to attend a test session with one of the researchers at the University of Warwick Sleep and Pain Laboratory located at the main Central Campus (Coventry). 

The test session typically takes no longer than 2.5 hours. As a thank you for your...

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Posted: October 22, 2021

We are pleased to announce that fundraisers can now create their own fundraising page and collect sponorship donations on our website. With Virgin Money Giving closing down at the end of November 2021 we needed a way to faciliate our wonderful supporters in their fundraising events. Head over to our new section to learn more and set up your own page!

Posted: September 2, 2021

Cumbria Headache Forum - Cluster Headache - 7th October

We would like to invite patients as well as medical professionals to join us for the next Headache Forum which is dedicated to management of cluster headache. It will provide insight into pathophysiology of the condition, pharmacological management and neuromodulation.

Programme:

  • 1:30pm Warm welcome (Chair) - Dr Jitka Vanderpol
  • 1:35pm Cluster Headache - Dr Manjit Matharu
  • 2.15pm Cluster Headache Management in Community Headache Clinic - Siobhan Jones
  • 2.45pm Injectable Treatments...
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Posted: August 19, 2021

You may like to contribute to this recent Department of Work and Pensions green paper consultation and survey. It "aims to explore how the benefits system can better meet the needs of disabled people and people with health conditions now and in the future... [and] is an important step towards making changes that will improve our services, increase opportunities for employment and help more people to live independently. Our approach must be informed by different views and opinions, particularly those of disabled people and people with health conditions."

...

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Posted: August 18, 2021

We now offer another super easy way to donate to OUCH (UK) with our latest text giving service*.  Here's how to do it:

To donate £1, text OUCH to 70201
To donate £3, text OUCH to 70331
To donate £5, text OUCH to 70970
To donate £10, text OUCH to 70191

* Fundraising, payments and donations will be processed and administered by the National Funding Scheme, operating as DONATE, a charity registered in England and Wales (1149800) and Scotland (SC045106). In addition to any text donation, you will incur your standard network message charge (based on your...

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