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Its finally here!!!
CLICK HERE TO BOOK YOUR SPACE FOR OUR SUMMER CONFERENCE
SUNDAY 30th June ST Thomas Hospital London
Hi can anyone tell me we’re it lists the up coming meeting please , thanks
To book Summer Conference, Si
Thank you Dorothy. It’s changed on here since I was last on. The meetings were listed for the year in different areas and were free
Tomorrow is our Summer Conference in Shepherd Hall at St Thomas' Hospital, London and we look forward to seeing old friends again and making some new ones.
See you there!
Will the slides from the presentations be online later as some are difficult to read.
A flavour of our Summer Conference.
Trustee Dorothy Chapman and member/fundraiser Graeme Brightmore with patient stories. Graeme also spoke about ketogenic diet.
Trustee Sandra McDowell speaking about the role of supporters.
Dr Giorgio Lambru in full flow speaking about cluster headache treatments and procedures.
Dr Iain Strickland talking about Gammacore and Cluster Headache
Dr Coppola talks about cluster headache
Dr David Watson telling the group how special we are as cluster headache patients. Patient centred care from general practice.
The Mike Pollock Award presentation. Tracy Wakefield was chosen for this award by our members. Tracy has been fundraising for OUCH (UK) since 2015 and last year scored a hat trick with her 3 events challenge which included the Brighton Marathon, the Great North Run and the Great South Run. Well done Tracy - a much deserved award!
Our remaining speakers taking questions at the end of the day.
Thanks so much to all who attended our conference. It was lovely to see old friends and meet new ones. My only complaint is that I don't get enough time to speak to every single person there.
I told my own story of 52 years with CH and looking around the audience, I saw many people who recognised themselves in my experiences over the years - the misunderstanding, the home remedies, the despair before meeting others who completely understood. In those first decades of being a sufferer, I could never have imagined standing in a room full of people who were the same as me. We truly are like a family.
I was delighted to spot several of 'my' fundraisers in the audience. I liaise with our fundraisers and so I feel I have a special connection to them. These heroes go to great lengths to spread awareness and raise any funds that they can to support their charity. A great big thank you to them and to all of you who managed to attend on the day. I know there were quite a few who wished they could attend but for various reasons, were unable to. I hope there will be the opportunity for these people to join their CH family at the next conference, there's nothing like it. Meanwhile, I'm sending you all my love and very best wishes and don't forget that there's hope for the future. Things can only get better.
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